Friday, December 16, 2011

Magical Disneyland

I loved Disneyland as a kid and always felt the magic. Matt and I wanted to take Lucy knowing she would love it. It was magical for all three of us. Thanks Walt Disney for making magic for all to enjoy. 
My favorite ride. Its a Small World. It was so cool and all done to Christmas Music and different Christmas scenes from all the different countries. Lucy danced the whole time. 
                 

If you can dream it, you can do it. - Walt Disney


Matt made the teacups a wild ride. We ended up on the teacups three times. 

Feeling Like a big girl on the Carousel

Thursday, December 15, 2011

My First Movies

The Muppets on Thanksgiving. Lucy loved her first movie. Thanks to the Diet Coke and tub of popcorn. 
Muppets went so well we decided to try it again at Happy Feet 2, This time around diet coke and popcorn wasn't enough to keep her in the theater. I actually wanted to stay and watch it. Lucy had other plans outside the theater. 

RUBY AVE.

Playing On Ruby Avenue 

Let your light shine. Shine within you so that it can shine on
someone else. Let your light shine.- Oprah Winfrey
Im so Lucky to have Lucy in my life. Each day her light
shines on me. 


Lucy Loves Accessories, some of her favorites are shoes, purses and yes sunglasses and these awesome goggles.

Monday, December 5, 2011

My California Girl


Just a few of my favorite things! Ive missed Trader Joes

Riding the Carousel in The Wind



The Ferry 

Lucys first poop in the toilet



We love Balboa Island

Fashion Island Christmas Tree








Back To California

Matt and I are back in California on another 6 month adventure! We feel lucky to have these fun times while we still can. We feel right at home living near Newport Beach. 



Lucy and I found a Playground where she is big enough to do it all on her own! She feels so big and independent.

Lucy loves the sand and water. 
After a Long two days of driving with no naps we made it to sunny California!
And then once we arrived Lucy decided to fall asleep.


Tuesday, November 22, 2011

Family Pictures 2011




Molly Jones took our photos this year! There are some cute ones. Lucy is growing up so fast. She was not very cooperative. Thanks to Annie she smiled for at least a few.

Wednesday, November 16, 2011

Billy goes back to his Heavenly Father













My sweet uncle Billy fought a tough fight but always remained positive. Thank you Billy for your example of courage and faith. We love you Billy and know that you are in the presence of our Heavenly Father.

William Eric Boren
1956 ~ 2011  William Eric Boren, beloved son of William R. and Norma Jean Nuttall Boren died 14, November 2011. Born 2 December 1956 in Salt Lake City. An Eagle Scout, he graduated from BYU and served a mission to Thailand. Employed by Associated Foods. Loving father to Erika Longfellow (Ammon), Leif, Kalen, and Ella Boren. Bill was a happy warrior. Resisting the effects of muscular dystrophy, he never gave in to his challenges. Early this year he volunteered at the University of Utah Hospital to the implanting of an LVAD, a heart assist device to increase his quality of life. This device and the staff at the University Hospital served him well. Bill loved people. Each person he met became a friend and fellow traveler. He cherished living in beautiful Liberty, Utah. He cherished the loving kindness of friends in Liberty and his fellow workers at Associated Foods. He is cheered onward by his siblings: Becky (David) Burbidge, Clark (Denise) Boren, Mark (Shelley) Boren, David (Cynthia) Boren, Todd (Leslie) Boren, Betsy (Steve) Willerth, Jeanne (Aaron) Hall and Jason (Angie) Boren.
Services will be held Friday, 18, November at 11 a.m. in the Arlington Hills Ward, 1300 Fairfax Road. (335 North 1340 East, SLC.) Thursday 17, November, there will be an evening viewing from 6 to 8 p.m. at Larkin Mortuary (260 East South Temple Street) and again Friday, 18. From 10 to 10:45 a.m. at the Arlington Hills Ward. Burial will be in the Salt Lake City Cemetery.
In lieu of flowers, please contribute to the University Hospital.

Published in Deseret News from November 16 to November 17, 2011

Example of Faith


Heart surgery improves life of Utah man
image
Leah Hogsten | The Salt Lake Tribune Utahn Bill Boren swims with the help of a nurse, who carries Boren's LVAD battery pack, and physical therapist Lisa Carter (left). Boren, the first recipient of a waterproof artificial heart in North America, and Craig Selzman, surgical director of University of Utah's heart transplant program, demonstrated the device when Boren swam Thursday, September 22 2011 at the IJ and Jeanne Wagner Jewish Community Center. Boren, 54, has muscular dystrophy and swimming is part of his therapy.
Bill Boren can swim again, thanks to a surgery new to North America.
On Thursday, with the help of his physical therapist, he did a frog-style backstroke and some water aerobics under a beautiful summer sky at the IJ and Jeanné Wagner Jewish Community Center pool in Salt Lake City, a remarkable feat for a 54-year-old man with an artificial heart pump that needs an external power source.
“It feels good,” he said, turning his face to catch afternoon rays. “It’s a natural high.”
The Utah father of four has a type of muscular dystrophy that mostly affects the large muscles in his legs, shoulders and heart. Muscular dystrophy is a group of hereditary and non-hereditary diseases that weaken the musculoskeletal system.
During the 30 years of his illness, Boren’s heart gradually lost its ability to squeeze more than 15 percent of his blood from his left ventricle to his body. Craig Selzman, surgical director of the University of Utah’s heart transplant program, said a healthy adult heart pumps about 65 percent of the body’s blood per minute.
Boren was too sick for a heart transplant. So his surgeons recommended an artificial heart pump called a left ventricular assist device, or LVAD, be implanted in his chest.
Now, Boren has what his medical team calls a waterproof heart.
Selzman knew that in Europe, surgeons had implanted around 80 LVADs whose battery packs were attached to a port created behind the patient’s left ear. Because Boren was a swimmer, and because exercise is vital for a healthy body and mind, the U. pushed for and received special permission from the U.S. Food and Drug Administration — which hasn’t yet approved this approach — to do the surgery the European way, which his insurance covered.
The U., a pioneer in heart-transplant medicine, has implanted about 1,100 LVADS in patients. The one in Boren’s heart was invented by Robert Jarvik, who received his medical degree from the U. in 1976 and whose Jarvik 7 artificial heart in 1982 was implanted in retired dentist Barney Clark, who lived 112 days after the surgery.
The Jarvik LVAD is about the size of a D battery, looks like a silver bullet and contains a spinning rotor. It is sewn into a patient’s left ventricle. A woven Gore-Tex tube provides a conduit for blood to the aorta — the largest artery in the body. Also attached to the bullet are plastic-encased wires.
Ordinarily, the LVAD wires are threaded through a surgically created opening in the patient’s abdomen and connected to the power source, and cannot get wet. In Boren’s case, Selzman said, the wires were threaded from his ventricle under the skin of his chest and scalp to a steel platform surgeons anchored inside his skull behind his left ear. The platform has a water-impervious port similar to those in common electronic devices that need recharging. The port is where Boren plugs in his battery, whose controls can be adjusted according to his heart’s needs.
To demonstrate his new water-friendly device, Boren and his physical therapist, Lisa Carter, eased into the pool using a submersible wheelchair. Once in, he rolled on his back, his head partway under water, and swam while a nurse walked along the edge of the pool holding the battery pack. He followed the swim with pool aerobics designed to strengthen the anti-gravity muscles his disease has sapped.
Boren’s swim was his sixth since his long recovery from the March surgery. “I’m improving every time,” he said, though it takes him a day to recover from a one-hour session.
The Jewish Community Center gave Boren a membership so he could use their outdoor pool, and the center is having a lift installed in the indoor pool so he can keep working out when the weather turns.
Before he got in the water, Boren said he used to swim 30 minutes a day, five days a week. He previously had a defibrillator implanted to shock his heart into action and was on medication to counter his muscular dystrophy, but he was deteriorating.
Though difficult, the LVAD surgery saved his life. “I wouldn’t be here today if I [hadn’t] had this surgery done,” he said. “I’d be long gone.”
Boren hopes his pool therapy can help him walk again. He still gets a little nervous when he has to unplug to change out his battery, he said. But he can shower, and he doesn’t have to change bandages or risk infection as he would if the power connection were in his soft abdominal tissue.
“Just taking a shower made my quality of life better,” he said. “I love life. ... I’m just lucky.”
Blinking back tears, Boren thanked Selzman and the others who convinced him to go through with the surgery. “I thought I owed it to myself and my family to try to keep myself alive,” he said. “I am grateful. There are days when I wake up and [say], ‘Man, I’m hooked to a battery.’ It’s just amazing.”
What’s an LVAD?
A left ventricular assist device, or LVAD, is a battery-operated mechanical device surgically implanted in a patient to help a malfunctioning heart keep beating. Sometimes called a “bridge to transplant,” an LVAD helps buy time for people waiting for heart transplants. More recently, LVADs have been used longer term as part of “destination therapy” for heart-failure patients who don’t have the option of a transplant.
In most cases, plastic-encased wires attached to the pump are brought through the abdominal wall to the outside of the body and attached to the pump’s battery and control system. But for the first time in North America, surgeons at the University of Utah have tunneled the wires under a patient’s chest skin and scalp to attach to a port in the skull behind the left ear.

© 2011 The Salt Lake Tribune

Sunday, November 6, 2011

California!






Matt and I went to California this weekend, it was business mixed with some fun. We ate a yummy dinner with my aunt Betsy and her family in Huntington, we also visited Matts sister in San Diego and played on the beach. I love California and feel at home there. Lucy loves the ocean and loves sand. If I let her she would run straight into the water fully clothed in 50 degree weather. I have a beach girl.